Wednesday, August 13, 2008
It's a GREAT day!
Laynie now weighs 3 lbs!!! She's off the oxygen and breathing on her own now. All she has is a tiny feeding tube in her mouth. She's SO beautiful with all that equipment gone. Later today they are going to take her off the IV and she'll be on breast milk only. She's just progressing in leaps and bounds. I will be able to start breast feeding her in the next week or two. I'm SOOOO excited!!!!! I'm so ready to bond with her.
Taylor is very stable and comfortable. We are just waiting as each day passes hoping and praying that his intestines will heal on their own. The surgeon looked at his tubes yesterday and said she was very happy with the way everything looked. They are going to do an x-ray this weekend and they are pretty hopeful that his intestines will heal on their own and so he may be off the breathing assistance, morphine and can take the tubes out. We can't wait for this. We haven't had a chance to see Taylor's personality and with him being on the morphin he really doesn't open his eyes much.
We took some great pictures over the past few days, so we will get those posted soon. Josh and I are doing great! We are all settled in and have a schedule for each day. It does seem as though days are going by fast, although most of the time we don't remember what day it is.
We love you all!
Taylor is very stable and comfortable. We are just waiting as each day passes hoping and praying that his intestines will heal on their own. The surgeon looked at his tubes yesterday and said she was very happy with the way everything looked. They are going to do an x-ray this weekend and they are pretty hopeful that his intestines will heal on their own and so he may be off the breathing assistance, morphine and can take the tubes out. We can't wait for this. We haven't had a chance to see Taylor's personality and with him being on the morphin he really doesn't open his eyes much.
We took some great pictures over the past few days, so we will get those posted soon. Josh and I are doing great! We are all settled in and have a schedule for each day. It does seem as though days are going by fast, although most of the time we don't remember what day it is.
We love you all!
Monday, August 11, 2008
Precious Moments
Laynie and daddy got to Kangaroo together today. This is a time where we can hold the babies skin on skin. I took some really cute pics so we will try and get those posted soon. She's a daddy's girl...I can already tell. She slept on his chest the whole time and didn't make a peep. She's now weighing 2 lbs, 14.9 oz. She's up to 8 cc's of my milk every 4 hours. Nurse said she's already turning herself in her bed. It's SO amazing how she is progressing. We really want to see Taylor do the same very soon. He weighed 1 lb, 12 oz. This is great news! He's actually more than his birth weight now. He's not getting any of my milk, but will once his intestines are healed. Both babies had a great day today. We are looking forward to more days like this.
Josh and I are settled into our room across from the hospital. I'm starting to walk over to the hospital each day and doing well with my recovery. We are SO blessed to be able to stay so close to our babies. I'm really not sure what we would have done without this option.
Josh and I are settled into our room across from the hospital. I'm starting to walk over to the hospital each day and doing well with my recovery. We are SO blessed to be able to stay so close to our babies. I'm really not sure what we would have done without this option.
Looking Much Better Today!
It has been a roller coaster ride since my last post. On our way to the apartment on Saturday we got another call from the docs. Taylor wasn't going pee and hadn't for quite some time. The docs were very worried about his kidneys. They let us know that they were going to do an ultrasound to look at his kidneys and wanted us to come in as soon as we got there to talk with the docs. This was probably one of the most scariest moments. Josh and I walked into the NICU and 4 docs were standing around Taylor's bed. I FREAKED! It just didn't look good. One of the docs explained their concern and said all we can do is wait for the ultrasound results. We were supposed to get the results by 3 in the afternoon and the ultrasound tech ended up getting called into the ER. SO....we waited and waited. Talking and praying with Taylor. Finally, the ultrasound was done and the results came in. Everything was FINE with his kidney's. The docs were stumped at this point. Why wasn't Taylor going pee??? Thanks to my hubby for asking a lot of questions they decided to put a new catheter in to see if maybe that was put in wrong the first time. Guess what! That was the problem. With a new catheter, Taylor was peeing. Talk about a lot of stress! We believe everything happens for a reason so maybe that error helped something else.
Taylor is still fighting through this intestine issue. He's doing so good. Fighting with every breath. They have him on morphine, but took him off a few other drugs last night and this morning he was alert. Josh and I read to him and spent some solid quality time talking and praying with him. He opened his eyes and kept looking over to me and then back to Josh. It was the most beautiful time with him. Seeing him a little more alert and moving a bit has given us the hope we need to continue to fight with him. Doc says Taylor is on the right track and everyone is very hopeful that his intestines will heal on their own. It will take about a week to 2 weeks before we will know if it heals on it's own or if he'll need surgery.
Laynie is doing amazing! She's gaining her weight back. Last night she weighed 2 lbs 13 oz. She was born 2 lbs 15 oz so she's on the right track. She's up to 7 cc's of my milk every 4 hours now. She's going to be packing on the pounds! The docs are planning to take her completely off oxygen in the next few days, so she'll be breathing without assistance. What a huge accomplishment. She now looks like a baby. She hardly has any equipment on her head and as soon as the oxygen goes all she will have is her feeding tube. She's also sucking on a binky and letting all the nurses know when she wants something. She has quite the personality. I'm pretty sure she's my girl. She's really funny. When we go and visit, most nurses tell us she just got done throwing a fit.....BUT she's always sleeping when we arrive. I try and try to wake her up and I'm pretty sure she's pretending to be sleeping. I figured out her game though. I told the nurse yesterday that all I have to do is go over to Taylor's bed and WOW she's awake! I look over and she's throwing her arms up and kicking her legs up and starting to fuss. Of course, mommy runs over to be by her side and hold her binky in! She's such a JOY!
We are SO blessed and see God everyday in our babies! We know he is working wonders and have no doubt that he will heal Taylor and then he'll be on the road to recovery and will quickly progress as Laynie is. Today is a GREAT day! What we've learned is that we have to take this day by day if not hour by hour. Things can change in a heart beat. We are thankful for each day and look forward to the day we can go home with our precious babies. We love you! Josh, Angie, Laynie and Taylor
Taylor is still fighting through this intestine issue. He's doing so good. Fighting with every breath. They have him on morphine, but took him off a few other drugs last night and this morning he was alert. Josh and I read to him and spent some solid quality time talking and praying with him. He opened his eyes and kept looking over to me and then back to Josh. It was the most beautiful time with him. Seeing him a little more alert and moving a bit has given us the hope we need to continue to fight with him. Doc says Taylor is on the right track and everyone is very hopeful that his intestines will heal on their own. It will take about a week to 2 weeks before we will know if it heals on it's own or if he'll need surgery.
Laynie is doing amazing! She's gaining her weight back. Last night she weighed 2 lbs 13 oz. She was born 2 lbs 15 oz so she's on the right track. She's up to 7 cc's of my milk every 4 hours now. She's going to be packing on the pounds! The docs are planning to take her completely off oxygen in the next few days, so she'll be breathing without assistance. What a huge accomplishment. She now looks like a baby. She hardly has any equipment on her head and as soon as the oxygen goes all she will have is her feeding tube. She's also sucking on a binky and letting all the nurses know when she wants something. She has quite the personality. I'm pretty sure she's my girl. She's really funny. When we go and visit, most nurses tell us she just got done throwing a fit.....BUT she's always sleeping when we arrive. I try and try to wake her up and I'm pretty sure she's pretending to be sleeping. I figured out her game though. I told the nurse yesterday that all I have to do is go over to Taylor's bed and WOW she's awake! I look over and she's throwing her arms up and kicking her legs up and starting to fuss. Of course, mommy runs over to be by her side and hold her binky in! She's such a JOY!
We are SO blessed and see God everyday in our babies! We know he is working wonders and have no doubt that he will heal Taylor and then he'll be on the road to recovery and will quickly progress as Laynie is. Today is a GREAT day! What we've learned is that we have to take this day by day if not hour by hour. Things can change in a heart beat. We are thankful for each day and look forward to the day we can go home with our precious babies. We love you! Josh, Angie, Laynie and Taylor
Saturday, August 9, 2008
3 AM Phone Call from NICU
A parents worst nightmare....getting a call at 3 AM is never good news. Last night they found a small hole in Taylor's intestine. If it were not for another procedure he had earlier in the day which required an X-Ray the docs may not have found this and with him being so small an infection would only take hours to form and he's too small to fight that off. They put him under last night and put 2 tubes in his tummy for drainage. He's now in the incubator and we can't touch him. The docs want to make sure he doesn't have and won't get an infection! We ask for your continued prayers and support. The docs truly believe that angels were watching over Taylor last night.
We are heading off on a new adventure. We check into our apartment across from the hospital today at 4:00. We will be right across from our babies 24/7. It just killed us last night not being able to be there with him. I'm SOOO glad I had a chance to hold him yesterday during Kangaroo Care. It may be a while before we can do that again. It has been a very emotional night and day, especially without much sleep. We would LOVE to see our friends at this point, but I think we need more time now that Taylor is not doing as well. We know that God and the angels are with him all of the time. Please keep us in your thoughts and prayers as we head down a very scary and emotional road with our baby boy.
We love you all SOOOO much! You keep us strong!
Josh, Angie, Taylor, Laynie and Hunter
We are heading off on a new adventure. We check into our apartment across from the hospital today at 4:00. We will be right across from our babies 24/7. It just killed us last night not being able to be there with him. I'm SOOO glad I had a chance to hold him yesterday during Kangaroo Care. It may be a while before we can do that again. It has been a very emotional night and day, especially without much sleep. We would LOVE to see our friends at this point, but I think we need more time now that Taylor is not doing as well. We know that God and the angels are with him all of the time. Please keep us in your thoughts and prayers as we head down a very scary and emotional road with our baby boy.
We love you all SOOOO much! You keep us strong!
Josh, Angie, Taylor, Laynie and Hunter
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