Good news....Taylor is almost 4 lbs now. Last night he weighed 3 lbs, 15.4 ounces. Tonight we are sure he will be at the 4 lb mark if not a few ounces above that.
Not so good news....we met with the physical therapist regarding his issue with eating. She gave us some exercises to use to try and help Taylor along with bottle feeding. He's now up to 35 cc's of milk every 3 hours and can only manage to take down about 5-15 cc's. Some of the feeding times he won't even take the bottle (he's too tired). Spoke with the doc today about this. Doc said he's not surprised after all that Taylor has been through. Even though Taylor is now 38 weeks, he's acting like a 33 week old baby. This means it's going to be a slow process. At the earliest, he would come home around 41 weeks and that's only if he's taking at least half of all of his feedings 100 % by bottle. That will take time to get to that point. At 44 weeks, the doc will start talking to us about feeding options at home if Taylor is not meeting this goal by then. This would require a small procedure to insert a feeding tube directly into his tummy. WE DO NOT WANT THIS TO HAPPEN. We must pray that Taylor will learn to bottle feed on his own in the coming weeks. Josh and I are just in shock to learn that we may be here for 6 MORE WEEKS!!!! We really thought Taylor would progress as Laynie did with feeding.
Doc said he's seen babies "flick a switch" and begin taking down feedings by bottle over night and others take it really slow. Let's pray that Taylor can turn this around soon.
Love,
Josh and Angie
Monday, September 29, 2008
Sunday, September 28, 2008
Taylor's Weight Gain
He's now 3lbs, 12.8 ounces. We are SO happy about his weight gain. We are very hopeful that this trend will continue. He should be moving to a crib soon. He's been keeping his temp in the incubator so they will test him in the crib. His biggest challenge right now is eating. He's still not doing so well with his coordination (breathe, suck, swallow). We are meeting with a physical therapist early this week to see what more we can be doing to help him. He's SOOO close, yet seems so far away from coming home. We had high hopes that he'd come home by his term date (Oct 11th), but it's not looking like that at this point. We expected that each day he would progress with his feedings, but that's not the case. He gets 33 cc's of breast milk and can only take about 5-15 via the bottle. On good days it's 15 and then the next day it may only be 5. We know that things can change over night and we are praying that it does with this. He needs to eat to come home!!!!
We are VERY anxious to have both our babies at home. We need to work really hard with Taylor each day to help him to progress. Please continue your prayers for our homecoming.
Love,
J & A
We are VERY anxious to have both our babies at home. We need to work really hard with Taylor each day to help him to progress. Please continue your prayers for our homecoming.
Love,
J & A
Thursday, September 25, 2008
Our Little Peanut Is Growing!
Last night Taylor weighed 3 lbs, 10.2 ounces. Yippee! I'm sure he will weigh more than that tonight. His big sis is now 5 lbs, 12.5 ounces. As promised here are some pics of Taylor.
Tuesday, September 23, 2008
Taylor Update
Things are still going well, although he's not gaining weight like we hoped. He's at 3 lbs, 7.2 ounces. At my last post on the 20th he was 3lbs, 6.8 ounces so you can see what I mean. He should be gaining several ounces each night on his current diet. Doc says he's burning tons of calories just breathing, pooping, crying, etc. His metabolizim is high and doc said probably will remain that way through out his life. He will probably always be a little guy especially since he was growth restricted in the womb. We are ok with that as we are a "tiny" family, including our dog...hee! hee! We just want to get home at this point. He's still struggling with eating. We are praying each night that we'll go in and see some progress. Over the past several days he hasn't made any so we are very hopeful that things will turn around soon. We were hoping he'd be coming home in the next few weeks, but it's looking like it will be longer at this point. As promised, I will get pics of him out on the blog soon.
Love,
J & A
Love,
J & A
Saturday, September 20, 2008
Computer Access
Hello Everyone - Our wireless access is down. It has made it harder for me to get to a computer to post. So, sorry! All is wonderful. Taylor is off of his oxygen and doing amazing with breathing on his own. He's working on bottle feeding and getting better as each day progresses. He's not gaining weight as quickly as all would have hoped. Tonight he didn't gain at all. Doc is watching closely and has put him on a higher calorie diet. We'll see what the next few days brings. He's 3 lbs, 6.8 ounces. He's still not able to hold his own temp so won't move to a crib quite yet.
Josh and I are VERY anxious to get home. Especially with Laynie being at the housing with us. It's very small and I think we're all driving each other nuts at this point. There's a lot you just have to laugh about and know that one day we'll look back on all of this and say "how did we do it"?
Laynie is up to 5 lbs, 6 ounces. She's Miss Piggy....she has chubby cheeks and a double chin now. Crazy!
Love,
Ang and Josh
Josh and I are VERY anxious to get home. Especially with Laynie being at the housing with us. It's very small and I think we're all driving each other nuts at this point. There's a lot you just have to laugh about and know that one day we'll look back on all of this and say "how did we do it"?
Laynie is up to 5 lbs, 6 ounces. She's Miss Piggy....she has chubby cheeks and a double chin now. Crazy!
Love,
Ang and Josh
Tuesday, September 16, 2008
Taylor Is Still Going Strong
He's now up to 3.5 lbs! Over the last several days the nurses have taken him completely off oxygen to see how he does on his own. He went most of the night and into the morning. That's wonderful for him!! His lung tissue is still forming so he's close to being off, but it will take some more trial and error. He's up to 25 cc's of breast milk. This will help him to stay strong, grow and help form that lung tissue he needs. He's completely off the IV now too. Thank goodness. He's a lot easier to take out and hold now that he doesn't have so many wires and tubes. He's been holding his temp pretty good on his own, so he should be in an open crib real soon. The biggest challenge for him is feeding. He's working on bottle feeding and it's a slow process with him. I know he'll catch on soon. We won't start breast feeding until he has the bottle down. We are just SO excited about his progress. It seems like each day we go in to see him he's met another milestone. He looks wonderful! We will get some pics posted soon.
All is great with Laynie. She's so fun! Although her days and nights seem to be mixed up. We try our best to fit in a nap during the day so we can manage the night with her. I sure hope Taylor is on this same schedule....EEEKKKKSSS!!
Everything is great on this end. Josh and I are REALLY ready to be in our own home, but we know that's just around the corner. Both of us will probably cry when we leave the NICU with Taylor. We've really become part of the family there and all the nurses have expressed how much they love us and our dedication to Taylor and Laynie. They tell us every day how much they miss Laynie and what it will be like without Taylor. They are already looking forward to the reunion in the spring!
Love,
Angie and Josh
All is great with Laynie. She's so fun! Although her days and nights seem to be mixed up. We try our best to fit in a nap during the day so we can manage the night with her. I sure hope Taylor is on this same schedule....EEEKKKKSSS!!
Everything is great on this end. Josh and I are REALLY ready to be in our own home, but we know that's just around the corner. Both of us will probably cry when we leave the NICU with Taylor. We've really become part of the family there and all the nurses have expressed how much they love us and our dedication to Taylor and Laynie. They tell us every day how much they miss Laynie and what it will be like without Taylor. They are already looking forward to the reunion in the spring!
Love,
Angie and Josh
Sunday, September 14, 2008
Taylor Is Doing Amazing!
His intestines are pretty much healed. I say pretty much because there is still an area where the intestine is enlarged. This is causing some pooling and taking a bit longer for stuff to move through. Doc says it's moving in the right direction to becoming normal. By the time Taylor is term (Oct 11th) it should be to normal size. The GREAT news is that everything is functioning as it should and he can start eating and progressing as Laynie did. It happens fast and he's already looking amazing respiratory wise. His staff infection should be clear by now. Docs are keeping him on the antibiotics for 10 days and I think he only has a few days left.
Today at 5 I get to try breast feeding him. I just can't believe it! It's amazing how quickly Taylor has turned around. I just CAN'T imagine anything else happening to him at this point. It seems as though he's finally on the other side of the hurdles. We are guessing he has about 3 weeks left. He still needs to eat without the feeding tube (so combo of breast feeding and bottle feeding), keep his temp, come off the oxygen, and gain weight. Laynie did all of this fairly quick, so we have high hopes that Taylor will do the same.
God has an amazing plan for Taylor. As I think back on all that he has gone through....from the small sac he started off in to his NICU stay, he has truly beat all odds and proved many people wrong. We've been told many times that he may not make it and I know docs and nurses in the NICU had their doubts, but God wants him here with us and I just can't wait to see what's in store for our little peanut!
Love,
J & A
Today at 5 I get to try breast feeding him. I just can't believe it! It's amazing how quickly Taylor has turned around. I just CAN'T imagine anything else happening to him at this point. It seems as though he's finally on the other side of the hurdles. We are guessing he has about 3 weeks left. He still needs to eat without the feeding tube (so combo of breast feeding and bottle feeding), keep his temp, come off the oxygen, and gain weight. Laynie did all of this fairly quick, so we have high hopes that Taylor will do the same.
God has an amazing plan for Taylor. As I think back on all that he has gone through....from the small sac he started off in to his NICU stay, he has truly beat all odds and proved many people wrong. We've been told many times that he may not make it and I know docs and nurses in the NICU had their doubts, but God wants him here with us and I just can't wait to see what's in store for our little peanut!
Love,
J & A
Friday, September 12, 2008
Things Are Going Well!
Laynie is such a joy! She makes the cutest little sounds. Josh and I are adjusting to parent hood. Laynie basically sleeps, eats and poops! She seems more awake and alert during the night (of course!!). I just hope and pray that Taylor is a night owl too! Sure....one thing I've learned about this whole process is that nothing goes as you plan. It's been a little difficult to juggle caring for Laynie, going to see Taylor, trying to sleep when you can, pumping, eating, taking Laynie to her appts, let alone my own. Then, some how remembering to pay the bills on time, call friends and family, I could go on and on. Josh and I keep saying....imagine when Taylor comes home. How will we ever go anywhere!
We've already learned to laugh a lot about things. For example, yesterday we had a "plan" to go see Taylor and get Laynie to her doc appt on time in Vancouver. We got in the car to head out and needed to eat on the run. Josh had one of those cold Starbucks drinks in the glass bottle. He opened it right before we were ready to pull out. He shook the bottle and the lid was loose. We had sticky Starbucks all over the inside of the car. 90% of it went on Josh, but it was a huge mess in the car. At first, Josh was SOOO up-set. I just told him, there's nothing we can do, we just need to get this cleaned up. After we got it all cleaned up and he changed we were on the road to Laynie's appt. At the doctor's office, we just had to laugh. That's all you can do. We worked as a team to get it clean and get Laynie to her appt on time! Later that day Josh detailed our car.
I'm very happy to report that Taylor is doing wonderful. He looks SOOOO good! He's gaining weight, now up to 3lbs, 4.8 ounces and his breathing is amazing! He's actually starting to look a lot like Laynie now. We still don't have much to report about his intestine issue. We'll know more early next week. Docs are hopeful that he won't need the surgery. That's his last hurdle. Then we can focus on bottle feeding, breast feeding and keeping his temp. We can't wait to hear them say he's home bound.
Love,
J & A
We've already learned to laugh a lot about things. For example, yesterday we had a "plan" to go see Taylor and get Laynie to her doc appt on time in Vancouver. We got in the car to head out and needed to eat on the run. Josh had one of those cold Starbucks drinks in the glass bottle. He opened it right before we were ready to pull out. He shook the bottle and the lid was loose. We had sticky Starbucks all over the inside of the car. 90% of it went on Josh, but it was a huge mess in the car. At first, Josh was SOOO up-set. I just told him, there's nothing we can do, we just need to get this cleaned up. After we got it all cleaned up and he changed we were on the road to Laynie's appt. At the doctor's office, we just had to laugh. That's all you can do. We worked as a team to get it clean and get Laynie to her appt on time! Later that day Josh detailed our car.
I'm very happy to report that Taylor is doing wonderful. He looks SOOOO good! He's gaining weight, now up to 3lbs, 4.8 ounces and his breathing is amazing! He's actually starting to look a lot like Laynie now. We still don't have much to report about his intestine issue. We'll know more early next week. Docs are hopeful that he won't need the surgery. That's his last hurdle. Then we can focus on bottle feeding, breast feeding and keeping his temp. We can't wait to hear them say he's home bound.
Love,
J & A
Tuesday, September 9, 2008
Things Are Getting Hectic!
Yesterday at 5 the doc called. I thought OH NO, what now! I assumed the call was regarding Taylor. It was about Laynie! She had a head ultrasound which is standard before discharge. A sign of a very small brain bleed appeared. We couldn't believe the news! 95% of the time brain bleeds only appear in the first 5 days of life. Doc really doesn't have an explanation as to why it would appear so late. At first we were devastated. Just the word brain bleed makes you think the worst. Turns out, Laynie's is not that bad and it's "resolving" which means it's healing on it's own. The doc said it's so minor that it won't even require any follow-up especially since it's healing on it's own. She did say that Laynie may or may not have some learning disabilities once she starts school due to this, but knowing that as long as we work with her she shouldn't have too many problems. Really, time will tell, but we are pretty confident that she will do just fine. After re-cooping from that news, we got news that Taylor's intestine problem has NOT healed on it's own. Another dye test is being done today and we should know tomorrow if he will need surgery. At this point, we are hoping for the surgery so he can get past this. Every week that goes by where he is not progressing is just another week in the hospital. He's very strong right now and getting stronger each day. Doc said today that he's the best he's ever been respiratory wise since he's been in there. He's getting through this Staph infection really well. And the BEST news of all is that the other bug was a contamination. Thank you Lord!!!!! Of course, another surgery will be hard on him, but we are hoping that he will heal just as well as he did after the heart surgery and will begin progressing as quickly as Laynie has. We'll keep you posted on the surgery.
Today we finally received some exciting news! Laynie comes home tomorrow!!! Yes, I said TOMORROW!!! We get to walk right out those double glass doors with our baby girl in our arms (well, in a car seat but arms sounds more dramatic). We finally get to care for our baby without a nurse looking over our shoulder and telling us what we can and can't do with her. She gets to go home and meet Hunter on Thursday as she already has a doctor's appt in Salmon Creek. WOW! Josh and I will know what a sleepless night feels like! Tonight I will be sure to cherish my last night a sleep for a LONG, LONG time. The news is a little bitter sweet though. How do you take one baby and leave the other? I don't know the answer to that. I will find out tomorrow. My biggest concern is having enough time to see Taylor and spend quality time with him. Josh and I will just have to be creative and make sure we find the time for Taylor who needs us so much.
Please continue your prayers for Taylor. He's finally looking SOOOO good especially respiratory wise which has been such a struggle for so long. Now we just need to get him past this intestine issue. We'll see what tomorrow brings which will be a VERY BIG day for so many reasons.
Love,
J & A
Today we finally received some exciting news! Laynie comes home tomorrow!!! Yes, I said TOMORROW!!! We get to walk right out those double glass doors with our baby girl in our arms (well, in a car seat but arms sounds more dramatic). We finally get to care for our baby without a nurse looking over our shoulder and telling us what we can and can't do with her. She gets to go home and meet Hunter on Thursday as she already has a doctor's appt in Salmon Creek. WOW! Josh and I will know what a sleepless night feels like! Tonight I will be sure to cherish my last night a sleep for a LONG, LONG time. The news is a little bitter sweet though. How do you take one baby and leave the other? I don't know the answer to that. I will find out tomorrow. My biggest concern is having enough time to see Taylor and spend quality time with him. Josh and I will just have to be creative and make sure we find the time for Taylor who needs us so much.
Please continue your prayers for Taylor. He's finally looking SOOOO good especially respiratory wise which has been such a struggle for so long. Now we just need to get him past this intestine issue. We'll see what tomorrow brings which will be a VERY BIG day for so many reasons.
Love,
J & A
Monday, September 8, 2008
It's Been Interesting!
Mid-day yesterday we got Taylor's spinal tap results. It came back negative for Menengitis, BUT positive for some other bug. Docs are completely puzzled about this. They've never seen a case like this and said if this bug is really present they will be writing a new chapter in the medical books. Doc said any bugs you find via a spinal tap are ALWAYS present in the blood stream first. All that was found in Taylor's blood stream was Staph not this new bug. They are comparing it to Ecoli as it's a long rod bacteria. The lab is doing a culture growth on a second sample from his spinal tap to confirm that there was no contamination. We should know the results within 3 days. They are putting Taylor on higher doses of antibiotics in the event he does have this. We confirmed that it's treatable and he will be fine, but we are really concerned about this new information and hope that he doesn't have another infection! Doc truly believes that Taylor does not have this new bug. He said he doesn't act sick at this point and all other blood work looks good. We will keep you posted.
Laynie is doing wonderful! The NICU is working on all of her discharge paperwork today and we should be taking her with us by end of week if not sooner. We are SO excited to know what it's like to be parents and to have her with us 24/7. It will be sad to leave Taylor behind, but we will still be staying across the street and see him daily. With all that's going on with him we've learned that you really have to be there to help with his care. The NICU is an amazing place filled with wonderful docs and nurses, but we've been in many scenarios, especially lately where if we were not present when some decisions were being made about his medical care, things could have been missed or tests delayed which could have been really bad for Taylor. Every 3 days we have new nurses (day and night) and sometimes it's every other day and even every day at times. If a nurse hasn't been with Taylor before and doesn't know how he's supposed to act or his history, mistakes are more prone. Anyway, we need to be there for him every day and be very active in all the decision making.
Taylor is loosing weight. He's now under 3 lbs. Laynie is fast approaching 5 lbs!!!
We love you all! And appreciate all the prayers and support.
Josh and Ang
Laynie is doing wonderful! The NICU is working on all of her discharge paperwork today and we should be taking her with us by end of week if not sooner. We are SO excited to know what it's like to be parents and to have her with us 24/7. It will be sad to leave Taylor behind, but we will still be staying across the street and see him daily. With all that's going on with him we've learned that you really have to be there to help with his care. The NICU is an amazing place filled with wonderful docs and nurses, but we've been in many scenarios, especially lately where if we were not present when some decisions were being made about his medical care, things could have been missed or tests delayed which could have been really bad for Taylor. Every 3 days we have new nurses (day and night) and sometimes it's every other day and even every day at times. If a nurse hasn't been with Taylor before and doesn't know how he's supposed to act or his history, mistakes are more prone. Anyway, we need to be there for him every day and be very active in all the decision making.
Taylor is loosing weight. He's now under 3 lbs. Laynie is fast approaching 5 lbs!!!
We love you all! And appreciate all the prayers and support.
Josh and Ang
Sunday, September 7, 2008
Sunday Update
We just found out that the staph that Taylor has is not the severe string of the bug. Praise God! The doc is very happy with how he looks today and how his blood work came back. The antibiotics are doing the job. As I type this, Taylor is having a spinal tap. They must do this to see if the staph bug spread too far which would mean Menengitis. Doc was pretty confident that Taylor doesn't have Menengitis, but it's standard protocal to check for this. We should know the results by end of day today.
At our 8 AM visit Taylor looked so much better than the past few days. I held him for about an hour and he loved every second of it! So did I!!!! He's so amazing and so precious. I just feel so lucky to be his mommy. His eyes were wide open looking up at me and it just took my breathe away. It was a wonderful bonding experience with him.
We'll keep you posted.
Love,
Josh and Ang
At our 8 AM visit Taylor looked so much better than the past few days. I held him for about an hour and he loved every second of it! So did I!!!! He's so amazing and so precious. I just feel so lucky to be his mommy. His eyes were wide open looking up at me and it just took my breathe away. It was a wonderful bonding experience with him.
We'll keep you posted.
Love,
Josh and Ang
Saturday, September 6, 2008
Taylor
Well, it has been very up and down the past few days. Taylor's spells stopped which has been a blessing, but we just found out this morning that he has a staph infection. Doc has him on antibiotics. We are not sure yet how severe the staph is. The culture results should tell us more tonight or early tomorrow. With that said, Taylor is looking really good and seems to be getting better with the antibiotics. We are very hopeful that the results will show that the staph is gone and not getting worse.
It just kills me to see him going through SOOO much! He's fighting and trying so hard to get ahead and there just seems to always be a hurdle for him to jump over. After the doc looked at him this morning he described Taylor as "spunky" and "full of energy". After all that he's been going through it just amazes all of us how strong he really is. He keeps proving everyone wrong and we love that about him.
Please continue your prayers for Taylor. God is with us all and He's listening every second of every day.
Love,
Josh and Angie
It just kills me to see him going through SOOO much! He's fighting and trying so hard to get ahead and there just seems to always be a hurdle for him to jump over. After the doc looked at him this morning he described Taylor as "spunky" and "full of energy". After all that he's been going through it just amazes all of us how strong he really is. He keeps proving everyone wrong and we love that about him.
Please continue your prayers for Taylor. God is with us all and He's listening every second of every day.
Love,
Josh and Angie
Thursday, September 4, 2008
Taylor Update
Things have gotten worse as the day has progressed. His spells are more frequent and docs really don't know why at this point. Blood work was done this evening and so far all has come back ok. At this point there's no sign of infection. A 24 hour culture is being done which will tell us for sure if there's an infection or not and we'll get those results tomorrow night. Since docs are not sure what's going on with him, they are trying to rule out an infection as that could be why he's acting so different all of a sudden. This all came on so quickly and Taylor should be passed having these spells. It's more concerning to us that the docs don't know what's going on with him. We'd rather have an answer so we can proceed with treating whatever is going on. In my earlier post I said the high flow nasal tube could only go as high as level 5. There's actually a level 6 which Taylor is now at. That's the highest he can go on this and if he continues to do bad through the night they will have to put him back on the Sea Pap. This is what he was on the first few days of his life that contributed to his intestine problems. We are really hoping he will not have to go onto this. It could cause problems with his intestines again!! He's truly moving backwards and he's gone down hill very quickly. Josh and I just got back from the NICU and I'm sure will not be sleeping well. I just hope and pray that our phone doesn't ring tonight!
My mother-in-law said something to me today that made me realize that God is with me every step of the way. She was in the NICU during one of Taylor's spells. Actually it was his worst one. It took him WAY too long to recover and start breathing again. I was actually Kagaroo'n with him so he was laying on me. The nurse rushed over and flicked his feet over and over and then pat on his back very agressively. This went on for so long, I wasn't sure that he would recover. It was very, very scary. The whole time I stayed calm and continued to talk to Taylor...letting him know that mommy was there. My mother-in-law had to leave the area as it was really hard to watch. Later, she said that I was very brave. When I look back on it all, I really don't know how I was so brave and calm. I really can't explain it. If someone told me a story like this I would imagine myself freaking out! The only answer I have is that God was with me and I felt him there with Taylor and I. I just had a peace about it all.
Taylor is such an amazing little guy. Every time he opens him eyes and looks at me, I see his strength and I know God is with him at all times. He has amazing plans for Taylor. I feel honored to be his mother and blessed that God chose me. I trust God and his plan. That's what allows me to sleep at night.
Please pray with us. We are asking that the docs find what's wrong quickly and that we will see Taylor progressing again soon.
Love,
Angie and Josh
My mother-in-law said something to me today that made me realize that God is with me every step of the way. She was in the NICU during one of Taylor's spells. Actually it was his worst one. It took him WAY too long to recover and start breathing again. I was actually Kagaroo'n with him so he was laying on me. The nurse rushed over and flicked his feet over and over and then pat on his back very agressively. This went on for so long, I wasn't sure that he would recover. It was very, very scary. The whole time I stayed calm and continued to talk to Taylor...letting him know that mommy was there. My mother-in-law had to leave the area as it was really hard to watch. Later, she said that I was very brave. When I look back on it all, I really don't know how I was so brave and calm. I really can't explain it. If someone told me a story like this I would imagine myself freaking out! The only answer I have is that God was with me and I felt him there with Taylor and I. I just had a peace about it all.
Taylor is such an amazing little guy. Every time he opens him eyes and looks at me, I see his strength and I know God is with him at all times. He has amazing plans for Taylor. I feel honored to be his mother and blessed that God chose me. I trust God and his plan. That's what allows me to sleep at night.
Please pray with us. We are asking that the docs find what's wrong quickly and that we will see Taylor progressing again soon.
Love,
Angie and Josh
Back on the Roller Coaster
It's amazing how quickly things can change, for better or worse. Through the night and today, Taylor is not doing well with his breathing and oxygen level. It's very normal for preemies to "forget" to breathe, but they usually recover on their own. Taylor and Laynie both went through this and we thought that both were beyond this. Taylor is struggling. The nurse has to rush over to him and flick his feet and move him around and get him to let out some good crying to get him to breathe and get his oxygen level sufficient. It's pretty scary to watch. What's even worse, my instinct is to step in and help my baby! It's really hard to stand back and watch this over and over. We are back on the emotional roller coaster today. The doc ordered an x-ray this morning to see what's going on in his lungs. Looks like he has fluid building up again. Doc said it's pretty typical after the heart surgery. They are going to give him meds to try and help flush out the fluids. Doc thinks that is what's behind his breathing trouble. Also, sounds like they might do blood work to see if anything abnormal shows up. We will keep you posted.
It's been really hard to take the news today. Taylor was progressing so well and to see him go through what they call "spells" with his breathing has made me very nervous. His high flow nasal tube started off on the highest level which was level 5. Then, slowly they put Taylor down one level at a time. He actually made it down to level 1 at one point, but now he's going backwards. They have him up to 3 again. They can put him back up to 5 if needed, but if he doesn't do well on 5, then he will have to have the ventilator again. I WON'T be able to handle that! I've stayed SO strong through all of this, but when you see your baby take steps backwards, it's a devastating feeling. Especially when you have a little one who's doing so wonderful at the same age.
We've been very blessed to have many good days in a row. Today is a reminder that life is extremely fragile. We have to stay strong and continue to move forward and fight through this as Taylor is doing. The nurse mentioned this morning that he seems tired....tired from the constant fighting. I know he won't give up and we won't either. We're a TEAM and Josh and I are right by Taylor's side fighting with him every step of the way.
We can't take a break! We all need to continue to pray and we all need to stay strong for Taylor. We thank each of you for your continued support.
We love you!
Josh and Angie
It's been really hard to take the news today. Taylor was progressing so well and to see him go through what they call "spells" with his breathing has made me very nervous. His high flow nasal tube started off on the highest level which was level 5. Then, slowly they put Taylor down one level at a time. He actually made it down to level 1 at one point, but now he's going backwards. They have him up to 3 again. They can put him back up to 5 if needed, but if he doesn't do well on 5, then he will have to have the ventilator again. I WON'T be able to handle that! I've stayed SO strong through all of this, but when you see your baby take steps backwards, it's a devastating feeling. Especially when you have a little one who's doing so wonderful at the same age.
We've been very blessed to have many good days in a row. Today is a reminder that life is extremely fragile. We have to stay strong and continue to move forward and fight through this as Taylor is doing. The nurse mentioned this morning that he seems tired....tired from the constant fighting. I know he won't give up and we won't either. We're a TEAM and Josh and I are right by Taylor's side fighting with him every step of the way.
We can't take a break! We all need to continue to pray and we all need to stay strong for Taylor. We thank each of you for your continued support.
We love you!
Josh and Angie
Wednesday, September 3, 2008
All Is Going Well!
Taylor is doing great! The doc ended up doing an x-ray to confirm that everything looked ok with Taylor's intestines. All is good, so they are increasing his feedings every 12 hours. He's up to 8 cc's of breast milk now. We are so very blessed to watch Taylor progress as he has. He has given Josh and I strength to keep moving forward. Taylor met a BIG milestone last night. He weighed 3 LBS!!!!!!!! Yippee! Grow Taylor, GROW!
Laynie is doing wonderful. Her breast feeding skills are improving by the day. We are so very proud of her. She weighed 4 lbs, 7.4 ounces.
Doc still says about 1.5-2 weeks until Laynie comes home and about 5 weeks for Taylor.
Please continue your prayers and support. We love you all and so appreciate you continuing on this journey with us.
Love,
Josh, Angie, Laynie and Taylor
Laynie is doing wonderful. Her breast feeding skills are improving by the day. We are so very proud of her. She weighed 4 lbs, 7.4 ounces.
Doc still says about 1.5-2 weeks until Laynie comes home and about 5 weeks for Taylor.
Please continue your prayers and support. We love you all and so appreciate you continuing on this journey with us.
Love,
Josh, Angie, Laynie and Taylor
Tuesday, September 2, 2008
Taylor
He's still too small to fit in his preemie outfits! His car pajama bottoms look like a blanket on him. He's SO precious!!
Taylor Update
Surgeon said everything looks good with Taylor's intestines. We are SO relieved to hear this. We did not want him to have to go through another surgery. He's been through SO much and we are excited to start seeing him progress more. They will slowly up his feedings and watch him closely, but sounds like all is good.
Taylor weighs 2 lbs, 14.7 ounces and is 14.5 in length. Laynie is 4 lbs, 3.9 ounces and 17 and 1/4 in length. All is going really well. She's still working on bottle feeding and breast feeding. Still looking like she'll be released in about a week and Taylor will have about 5 more weeks.
Love,
Ang and Josh
Taylor weighs 2 lbs, 14.7 ounces and is 14.5 in length. Laynie is 4 lbs, 3.9 ounces and 17 and 1/4 in length. All is going really well. She's still working on bottle feeding and breast feeding. Still looking like she'll be released in about a week and Taylor will have about 5 more weeks.
Love,
Ang and Josh
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