Back on the Roller Coaster

It's amazing how quickly things can change, for better or worse. Through the night and today, Taylor is not doing well with his breathing and oxygen level. It's very normal for preemies to "forget" to breathe, but they usually recover on their own. Taylor and Laynie both went through this and we thought that both were beyond this. Taylor is struggling. The nurse has to rush over to him and flick his feet and move him around and get him to let out some good crying to get him to breathe and get his oxygen level sufficient. It's pretty scary to watch. What's even worse, my instinct is to step in and help my baby! It's really hard to stand back and watch this over and over. We are back on the emotional roller coaster today. The doc ordered an x-ray this morning to see what's going on in his lungs. Looks like he has fluid building up again. Doc said it's pretty typical after the heart surgery. They are going to give him meds to try and help flush out the fluids. Doc thinks that is what's behind his breathing trouble. Also, sounds like they might do blood work to see if anything abnormal shows up. We will keep you posted.

It's been really hard to take the news today. Taylor was progressing so well and to see him go through what they call "spells" with his breathing has made me very nervous. His high flow nasal tube started off on the highest level which was level 5. Then, slowly they put Taylor down one level at a time. He actually made it down to level 1 at one point, but now he's going backwards. They have him up to 3 again. They can put him back up to 5 if needed, but if he doesn't do well on 5, then he will have to have the ventilator again. I WON'T be able to handle that! I've stayed SO strong through all of this, but when you see your baby take steps backwards, it's a devastating feeling. Especially when you have a little one who's doing so wonderful at the same age.

We've been very blessed to have many good days in a row. Today is a reminder that life is extremely fragile. We have to stay strong and continue to move forward and fight through this as Taylor is doing. The nurse mentioned this morning that he seems tired....tired from the constant fighting. I know he won't give up and we won't either. We're a TEAM and Josh and I are right by Taylor's side fighting with him every step of the way.

We can't take a break! We all need to continue to pray and we all need to stay strong for Taylor. We thank each of you for your continued support.

We love you!
Josh and Angie